Update on Karen. I wish I knew what was going on. I am beyond frustrated. She seems to be going backwards. She has not eaten in about 5 days except for the feeding tube. She has only done one PT in about 4 days and is very sick to her stomach and pain level is still 8 or 9 out of 10. They are giving her Zolfran, Finnegan, Atavan and Marapen for nausea. For pain she is on Oxicodone and dilated. Do you think that would be enough to make her comfortable.Nope. All it does is put her to sleep and when she wakes up her thoughts are getting scrambled again. I don’t want to go through that again. She was also given 2 units of blood with her hemoglobin at 6.7. With her being in Kidney failure, she does not produce blood like you and I so until she gets a kidney blood transfusions will happen. Even though she is on the donor list and is inactive, it may be a couple of years before one is there for her. As soon as she is able to receive a kidney health wise, I am going to ask anyone that is willing to get tested to find a match and be willing to donate a gift of life, to please step forward because I don’t want to see her go through this for years waiting for a cadaver kidney to be available. She does not deserve to be this sick and I am asking, God All Mighty, to have a little mercy on my wife and give her a break. Hope to be able to bring some good news one of these days. To all, have a good night and before you go to sleep, please say a prayer for my best friend and David’s mommy.
Al, I feel sad that Karen, David, and you are going through such a hard and trying. We’ve never met, but I hope that someday I will be able to meet you and Karen.
I’m wondering is a different pain medication would make a difference? Maybe there is something that would be more effective in controlling Karens’ pain, and that would not make her be so confused? Just a thought.
I’m continuing to pray for you and your family, and I pray for the Doctors to have the wisdom to treat Karen.
Continued strength to you Al.
Terri
The problem the docs are having is she is allergic to so much meds that they are limited on what they have to work with. Thank you for the prayers and look forward to meeting you if we ever get out of here
You are both in my thoughts and prayers.
Thank you
Al,
Normally when I do not hear from you for a period of time it means things are going well. I am sickened as I really believed Karen was on a steady path to recovery. Karen is strong and she is fighter.
I work at a medical school where I have voluntarily given samples of my dna and blood for medical databases.
xoxo
We love you so much Julie but what is really eating at me is a three letter word. WHY? She has been fighting this for now going on 11 months week after week and what is so frustrating is that every time she gets stronger. She gets knocked back on her can, time and time again. So many people are praying for her and she is now going backwards. WHY, WHY,WHY. LORD, Have mercy on my wife.
Al, my husband, Scott, is an anesthesiologist. He said, depending upon the cause of Karen’s pain, and whether the source is below the level of the sternum, that she may be a candidate for an implantable intrathecal pump to manage her pain without the side effects (dizziness, nausea, confusion, etc.) of oral the oral medications she’s been given. Please feel free to give him a call – he’d be happy to discuss it with you. Just send me an email, and I’ll reply with his cell phone number: bblonder@berkshire.rr.com
Akdsess@Gmail.com
I’m sending it to you now.
Dear Al:
Thank you for keeping us updated on Karen. I am so sorry she and your family is going through this tremendous pain. Why, is such a good question with no good or reasonable answer. I pray for peace and relief for Karen.
Al, I am so sorry to hear this. Karen – and you – remain in my thoughts.
Al,
We think of you, Karen and David all the time. Sending positive thoughts your way.
My thoughts and prayers are always with you. My husband, Chris, is a pathologist..trained at the Cleveland Clinic. If you need anything or have any questions, please feel free to email me. Is there a way I can get tested to see if I’m specifically a match for Karen? rschwimer@msn.com
Continuing to speak her name in prayers, thanking God for His sovereignity over Karen, you, David (and all things). May you be filled with peace and stand strong in faith, even though the answer to why is not forthcoming.
I’m so sorry to hear of the setback. I really thought she was on the road to recovery. Please know i continue to keep you all in my thoughts and prayers.